To New Readers "What I Have Been Up To"

Its been two weeks since my spinal fusion surgery. My recovery is going well, I will write more about that later.   I realized after I went to the hospital and told all the Doctors and Nurses about my hobbies and blog I was missing links and videos about some of the things I have done. I will add some links to this blog post to catch up to what I have been up to.  


Link to the Online Panel Video Including My Speech from December 2024

https://bio.news/health/children-with-rare-diseases-advocate-for-legislation-in-online-panel/

More about Paws Giving Independence where I volunteer and Tibbs came from


Paws Giving Independence Website

PBS Video that I interviewed for about Paws Giving Independence



You Gotta See This Peoria PBS Season4 Ep 6 Service Dogs

Website to learn more about CMD and collagen 6 related dystrophies



Collagen 6 CMD Dystrophies

Learn More About CMD 


I have tested these links but as you know sometimes they get broken or change.  Feel free to leave me a comment if they do not work for you and I will do my best to fix the issues!

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