To New Readers "What I Have Been Up To"
Its been two weeks since my spinal fusion surgery. My recovery is going well, I will write more about that later. I realized after I went to the hospital and told all the Doctors and Nurses about my hobbies and blog I was missing links and videos about some of the things I have done. I will add some links to this blog post to catch up to what I have been up to.
Link to the Online Panel Video Including My Speech from December 2024
https://bio.news/health/children-with-rare-diseases-advocate-for-legislation-in-online-panel/
More about Paws Giving Independence where I volunteer and Tibbs came from
Paws Giving Independence Website
PBS Video that I interviewed for about Paws Giving Independence
You Gotta See This Peoria PBS Season4 Ep 6 Service Dogs
Website to learn more about CMD and collagen 6 related dystrophies
Collagen 6 CMD Dystrophies
I have tested these links but as you know sometimes they get broken or change. Feel free to leave me a comment if they do not work for you and I will do my best to fix the issues!


Ace and I are happy to have you blogging again :)
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